Thursday, September 29, 2016

LIVER DONOR NEEDED

My cousin Kyle Broadwell is in need of a live liver donor.

If someone would like to be tested to see if they are a viable candidate, the person volunteering under their own choice, and who has an o+ blood type, must contact Kyle Broadwell .


Words from Kyle:
I'll try to keep this update as short as I possibly can. I have been diagnosed with an alpha one antitrypsin deficiency which is basically a genetic disease that attacks the healthy antibodies in your system and either destroys the lungs or the liver. Mine is an extremely rare form. There is only one option and that is to have a liver transplant. Last Thursday I became very ill and Sherry was able to get me to the emergency room while my mother took care of Luke.
I began to have some massive internal bleeding all of a sudden and rushed into surgery. They were able to stop the bleeding and I was air lifted to New York City to Montefiore in the Bronx where I got originally set up onto the transplant list. CVPH was able to stop the bleeding however if it started not to work or if I develop more they wouldn't be able to get me to someone with the staff and expertise in time. I made it out of Montefiore icu and now recouping best I can. There are a million things in the works and everything can change in a heartbeat but we are playing everything on the safe side. This hospital has a very good success rate and I can very well go on for another 40 or 50 years.
As much as I want to rush back home I'll need to play things right and I'll explain a few things that are going on so we are all on the same page.
As long as I'm still capable of making my own decisions I will. If I can't then Sherry is the second point person followed by my mother if Sherry can't.
I'm officially on the donor waiting list and can take a liver from someone who has passed or a living donor. Organs are in such short supply Living donors are an option and sometimes the best option because things can be scheduled and controlled more plus their liver can grow back to 95% of what it was before. Recovery time is around 12 weeks with feeling back to normal fully by 1 year. Out of all the people applying to be a living donor candidates only 10% of those will be approved so the more candidates the better.
All medical and travel expenses associated with a live donor transplant are covered by the recipients insurance.
If someone would like to be tested to see if they are a viable candidate, the person volunteering under their own choice, and who has an o+ blood type, must contact Kyle Broadwell
I'll post updates when they happen.
If you want to visit or send anything there are a few things to consider.
Please don't send flowers, balloons, stuffed animals. Intentions are well but I have no way to bring those items back with me and will end up getting tossed and I'll feel bad.
Don't send food. I never know what type of diet I will be allowed on any given day. I really don't want to stare at some pizza as I ponder what type of mystery mush I have to consume today. Not to worry, as soon as I can I'll be grabbing some authentic local delicacies, guaranteed.
Absolutely no surprise visitors. Please call ahead. Things can change so rapidly you could potentially waste a trip. If you are sick or even around someone that is sick, stay far far away. A tiny cold for you could be potentially serious for me.

Because my cousin Kyle has alpha one antitrypsin deficiency I am going to go get tested to see if I am a carrier or have it myself.  I grew up with Kyle and his sister.  We went to school together.  I detest being so far away from him right now.  Blogging about it is the only way in which I can help.
If you, dear reader, could possibly be a match and want to donate please call the above number.




Update...I'm sorry to say we weren't in time.

2 comments:

  1. Sending good thoughts that a donor is found!

    ReplyDelete
  2. Thanks Jen. I'm really hoping that we find an O+ donor soon.

    ReplyDelete

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