It is rather hard to believe that my liver is dying off. I know that my skin has turned yellow. It did so a year ago and I commented on it back then. I know that I've been tired for quite some time.
Last month when my cousin Kyle died I was shocked. Did I have the same genetic disorder? Well it turns out that I do. My lab results came in this week.
I am going to be put on the liver transplant list. By the time I get a dead person's liver I'll be dead since the list is very long. My best bet, even my doctor informed, is a LIVE LIVER DONOR.
I need an A Positive live Liver donor. Your liver will grow back. To schedule the surgery takes about 4 to 6 months after all the testing is done. Your liver grows back in about 8 weeks after the surgery. Oh and they don't take all of your liver but only a portion of it.
My primary care doctor put me in for my referral to see the gastroenterologist. I will hopefully get a call from one in the next week. Since the holidays are coming up I'm not going to hold my breath on getting an appointment this year as there isn't much of this year left. You also have to realize what type of insurance I'm working with. I have Tricare. I'm a military dependant.
There is no cure for Alpha-1 Antitrypsin deficiency. The only thing I can do is hope that I can get a liver transplant.
Meanwhile I need to update my final wishes. I've talked about them, albeit jokingly, with the family. Now this has to be a serious talk.
I guess I'll be back to blogging more often now as a new journey in my life has started. I'm hoping I have a long road with a happily ever after. For now it is a day-by-day and a plan for the ever-after and final ending.
If you think you'd like to be my Live Liver Donor please contact me. I don't need your whole liver but just a part of it. I don't need it today. Like I wrote above it does take some planning. Remember I need a perfect match of A+ (positive).