Tuesday, October 11, 2016

My Cousin Died

Last week my cousin died.  He didn't get the live liver donor in time to save his life.  He died from another bleed out while on the operating table.  We were all to late in our efforts to help out.

A  Go Fund Me  has been started for his widow to help cover the expenses she has incurred with her travelling back and forth and time off from work.  Help out if you can dear readers.  Here is the link for Kyle Broadwell

I still can't believe my dear sweet cousin is gone.  He was only 42.  I'm in shock.  I'm going about my daily routine pretty much in zombie mode.  Because it was a holiday weekend, one in my family we'd celebrate as a Thanksgiving of sorts when I was a kid since every old person headed south to Florida, the three of us went about town.

The night of Kyle's death I ate comfort food, as in junk food.
 Friday night we ate out.  I couldn't eat.  I ended up crying at the restaurant.
Saturday night we ate out again.  This time I did eat and ignored the world around me.  I was still choking back tears.  It has been hard.  DH hasn't been supportive.  By Monday night I had to have a long talk with him about his nasty treatment of me this weekend.  He apologized.  I mean geez if it had been one of his family members we'd of flown home for sure.  I knew we couldn't because of his school so I took what I would have spent in hotel, airline tickets, car rental, and food added it up then donated it.

I know I'm rambling.

I'm a mess.

I'm now waiting for my results of the Alpha 1 antitrypsin to come back.  I'm not sure how long it will take.  I'm really hoping I don't have.  It is bad enough I have moderate NASH and Asthma adding the Alpha 1 in also would be like stamping an expiration date on my forehead.

Thursday, September 29, 2016


My cousin Kyle Broadwell is in need of a live liver donor.

If someone would like to be tested to see if they are a viable candidate, the person volunteering under their own choice, and who has an o+ blood type, must contact Kyle Broadwell .

Words from Kyle:
I'll try to keep this update as short as I possibly can. I have been diagnosed with an alpha one antitrypsin deficiency which is basically a genetic disease that attacks the healthy antibodies in your system and either destroys the lungs or the liver. Mine is an extremely rare form. There is only one option and that is to have a liver transplant. Last Thursday I became very ill and Sherry was able to get me to the emergency room while my mother took care of Luke.
I began to have some massive internal bleeding all of a sudden and rushed into surgery. They were able to stop the bleeding and I was air lifted to New York City to Montefiore in the Bronx where I got originally set up onto the transplant list. CVPH was able to stop the bleeding however if it started not to work or if I develop more they wouldn't be able to get me to someone with the staff and expertise in time. I made it out of Montefiore icu and now recouping best I can. There are a million things in the works and everything can change in a heartbeat but we are playing everything on the safe side. This hospital has a very good success rate and I can very well go on for another 40 or 50 years.
As much as I want to rush back home I'll need to play things right and I'll explain a few things that are going on so we are all on the same page.
As long as I'm still capable of making my own decisions I will. If I can't then Sherry is the second point person followed by my mother if Sherry can't.
I'm officially on the donor waiting list and can take a liver from someone who has passed or a living donor. Organs are in such short supply Living donors are an option and sometimes the best option because things can be scheduled and controlled more plus their liver can grow back to 95% of what it was before. Recovery time is around 12 weeks with feeling back to normal fully by 1 year. Out of all the people applying to be a living donor candidates only 10% of those will be approved so the more candidates the better.
All medical and travel expenses associated with a live donor transplant are covered by the recipients insurance.
If someone would like to be tested to see if they are a viable candidate, the person volunteering under their own choice, and who has an o+ blood type, must contact Kyle Broadwell
I'll post updates when they happen.
If you want to visit or send anything there are a few things to consider.
Please don't send flowers, balloons, stuffed animals. Intentions are well but I have no way to bring those items back with me and will end up getting tossed and I'll feel bad.
Don't send food. I never know what type of diet I will be allowed on any given day. I really don't want to stare at some pizza as I ponder what type of mystery mush I have to consume today. Not to worry, as soon as I can I'll be grabbing some authentic local delicacies, guaranteed.
Absolutely no surprise visitors. Please call ahead. Things can change so rapidly you could potentially waste a trip. If you are sick or even around someone that is sick, stay far far away. A tiny cold for you could be potentially serious for me.

Because my cousin Kyle has alpha one antitrypsin deficiency I am going to go get tested to see if I am a carrier or have it myself.  I grew up with Kyle and his sister.  We went to school together.  I detest being so far away from him right now.  Blogging about it is the only way in which I can help.
If you, dear reader, could possibly be a match and want to donate please call the above number.

Update...I'm sorry to say we weren't in time.

Sunday, September 11, 2016

I Bought a Gun

Yup I bought a gun on Saturday.  I saw it online and just had to have it.  It isn't politics.  It isn't for protection.

I just wanted it.  I had to have it.  So I bought it.

I won't be securing it from my child.  I doubt I'll even load it.

If I try to shoot it it will probably explode in my face with my luck.

So why, just why did I buy the dang thing?

Sentimental value.

This is my new gun:

As far as I can tell it is a Blunderbuss.  Most likely a "dragon" and from about 1750.  It is sentimental for me as I had to ancestors fight in the American Revolution on my paternal grandmother's side.

The seller wanted $500 and said similar went for $2000.  I had done my homework.  The similar were in much better condition so I was able to talk him down to $350 even though he claim he himself paid $500.

I will be putting this in a special display case in my home.  If anyone knows more about this gun please tell me.  I'm going to add it to my insurance.

Wednesday, September 7, 2016

Life at the New Post

I'm going to do this update as briefly as possible since it has been a few months.

  • We moved in July to the Mid-West to a new duty station.
  • Eily turned 2 in July
  • DH is now in school at the new duty station with us
  • Obviously we didn't go to Korea
  • I'm making jewelry and will attempt to post photos
  • Eily speaks in complete sentences now
  • Eily can do some addition
  • Eily can read a few words
  • Eily can spell a few words
  • Eily loves to swim and is a great jumper too
  • Eily has her bottom 2 yr old molars in but not yet her top ones
  • She is almost potty trained and she gave up the potty chair in preference for the toilet with a reducer ring.
  • She is 36 inches tall and about 30 lbs
  • She brushes her own teeth, can dress herself, and is doing good on learning to wash up too.
  • She can use fork, knife and spoon and eat off of a plate with ease.  Well not so much the knife we are still working on the pressure to cut with that a bit.
  • Eily helped me assembly and build the new bed frame when the moving company broke my old one.  She is pretty good with an Allen Wrench.
Now for photos:

blue topaz 8 inch bracelet
Eily age 25 mos

Monday, May 23, 2016

4 Days Post-OP

Thursday I had my gallbladder removed.  I'd say I feel better but right now that would be a lie.  I do look better.  My skin is no longer a sickly yellow that it has been for almost a year.  I'm now in the bloom of pink to my cheeks once more.

Due to my adhesions the surgeon couldn't do the normal four-five cuts on the right side.  He had to do one cut under my xiphoid process, another  two off to the left, 1 just above my naval.  Two look to be infected already but it is hard to tell under the layers of glue.

The strapping pain from the gas is the killer.  My shoulders hurt so bad.  I gained roughly 8 pounds from the gas and fluids of surgery and have 3 more to shed.  I had been losing weight before the surgery and eating healthy.  I was already down to a size 14 and working towards a size 12.  Right now the only thing comfortable is sweat pants.

We aren't going to Korea as a family.  Do to the mess with the N.K leader the area I would have gone to is now not allowing family members.  For now E is enjoying her time with daddy.

Ugh I need to go lie down again.  My arms are killing me.

Wednesday, April 13, 2016

21 Months

E has a cold.  This isn't the first.  She is cranky.  Not much new to tell.  Everything she says right now is "NO" even if she decides she does want it after.  LOL

Tuesday, March 8, 2016

20 Months Already

Time has flown by again.

E no longer babbles like she used to.  The other day she said, "look at me".

She says:
Me Me

to add to just a few new words in the past few days.

She duck walks, jumps, and likes to climb the rock wall.  We are still working on potty training.  Just need to find time for everything!!!!

Smiling with food in mouth

E's hair is curly so we need to pull as much of it back as possible at all times to prevent it from tangling.