Thursday, May 25, 2017

Coming Down on Orders

It is that time again.  We are going to be moving. 

I know it feels like we just moved last year.  Um, we did.  We DID!

DH is about to graduate near the top of his class.

We no longer have to worry about this job being Class VII ultra sneaky sensitive ninja secret either.

That is a big relief.

The cat is now on his 120 day in house quarantine.  He had his FAVN test and we are waiting on those results.  Rabies shot was given last week.

Now it is all paperwork and more paperwork, and pictures and paperwork.

We are off to Paradise.

Yes we are going to do a PCS to Hawaii.

Three years in the beautiful Sandwich Islands.

I'll have my own car.  E will be in pre school. 

I'll have a liver transplant hospital on the Island too if I need it.

Yay!

Saturday, May 6, 2017

Missing Days and now a Month

I've been a very bad blogger.  No I'm not going to shut down the blog.  I've just been very sick.

My liver of course is getting worse.  The itching is driving me nuts.  Itching is from the build up of bile salts.

Eily is growing like a weed.  She is already wearing 4 and 5 in clothing.  The rain coat I just bought her is a 5/6.  She won't even be 3 for a few more months.  How much taller is she going to get before she hits 3?

I'm so tired.  I fall asleep on the floor during play time with Eily.  Yes, even when she is bouncing on my back.  I'm just so exhausted that I don't even care that it hurts.  I just can't get up to push her off of me.

Exciting news is that we are getting ready for a move to Hawaii.  I can't wait for that.  There will be a good transplant hospital nearby.  But I still have to get even sicker before they can do the transplant.  This fatigue I feel is nothing.  I'm still only a MELD score of a 7 at 6 months ago.  I'll be getting a lab draw this coming week and my next Hep A shot by Friday.

Wish us luck.  I'll try to blog more often.  Just so tired.

Here is a picture of me with Eily.
I cut my hair really short so that I don't have to fight with the curly hair tangles.  Eily's hair is still long.

Now me with makeup where I try to hide the fatigue.
The lighting I used also helps make me look healthier too rather than the natural sun I was using in the first photo.  And I've lost almost 10 pounds from the first photo to this photo I took last week.  Took just 2 weeks to lose it and I didn't do anything differently in my food intake either.  Got to love being sick.

Thursday, March 9, 2017

Frittering Away the Days

Time is slipping away.  I have a normal routine and it drags me out.  I'm gaining weight.  I've now gained about 20 pounds in bloat.  The whole IBS vicious cycle with the water pill, potassium and IBS meds is wrecking me.  I'm not really sure what real energy is.  I thought I had a bit of it last week only to plunge back into the funk once again.  Maybe I used up all the energy I had to spare last week?

DH is doing quite well in school.  He is still in the running for honor graduate.  Geez that thunderstorm sounds like it is going to blow the roof off.  Sorry for that bit of interruption.  Brain see or hears something it processes and off it goes on yet another path.  So yes DH is doing well.  Today he called me from the school house to help him fill out his dream sheet.  The dream sheet is where military personnel write down their list of dream assignments.  It doesn't mean they'll get it, but it is a dream sheet.  We put Hawaii at the top of the sheet.  Who wouldn't want to go there for a few years?  They have a good liver transplant hospital there too.

E is doing well.  I can't believe that in just a few months she'll be 3 years old.  Where did my baby go?  By the time we move to the next duty station we'll be able to enroll her in preschool.  She continues to spout off large words and long sentences.  Her math skills are improving too.  She has good manners and is rarely a bad child at restaurants.  She isn't perfect.  She is stubborn, and wants to do things her way.  She still has her daddy wrapped around her little finger too.

Wednesday, January 4, 2017

Liver Biopsy Results

Steatohepatitis mild.  It has improved since the very first diagnosis of moderate I'm pleased to say.

However the labs showed that my MELD score has gone up and I'm now at a 7.

I did bleed out during the procedure which rarely happens.

Such is life.  It is a see saw.  I improved but I didn't.  I'm okay with that.  I'm not going to die today unless something really bad happens like I trip over a match and impale and/or cut a major organ or artery.  Likelihood of that is 0.4%.

Monday, December 26, 2016

My Little Workshop

I've been keeping myself busy making jewelry.
Kyanite and White Sapphire set in sterling silver



cat's eye Moonstone, Peridot, and Alexandrite set in Sterling Silver

10kt Rose gold with diamond accent with 9x7mm Smokey Topaz


some of my gems and settings

a few of my tools

My mom sent me a nice Dremel set including butane torch and engraving tool.  She also sent along a Dremel stand so I can do more hand free work.  I have to admit for being untrained I think I'm doing pretty darn good on my jewel. 

The 30th of December I have a liver biopsy.  Wish me luck.

Sunday, December 25, 2016

Merry Christmas

Our morning started off quite well.  Eily opened up her gifts and helped us open up our gifts.

J videoed a good portion of the morning.

J did all the cooking and all the clean up.  Yay!  Mommy got to take a much needed afternoon nap before the guests arrived.

Our neighbors came over.  Julia, Nick and little Greyson brought over some wonderful rolls.  Jesus arrived a little late but his place at the table was set.  Jesus stayed the longest with us since he no one to go home to today.  Julia had the day off from hard work of housework and loved it as much as I did.  We are making plans on doing more things together after the holidays.

Everything went fine until the late evening call.  Wishing I hadn't called now.  Turns out some of the family doesn't like finding out that our precious daughter was conceived using ART.  Noses got bent out of shape.  I said the f word quite a bit.  I feel as though we should educate the public more so that our child have a future just the same as any kid out there.  I mean it is going to come out that they are children of ART sooner or later.

I cried.  She is my baby.  I detest those that dare call her a "non human".  May they rot in whatever hell exists.  I can't believe I actually got a lecture from a family member tonight to basically not tell anyone about how she was created.   Why?  I'm not ashamed of my baby.  I'm not ashamed of the process.  If I can enlighted people to the truth I will.

It is so nice to find other parents that had infertility issues that used ART too.  It is a relief when I move to a new installation to find someone that is open like I am about the struggles we go through.  To hide it is to hide behind a veil of shame, to hide in a closet crying in pain while others have what we long for, what we would die for.

How can those people be a hypocrite on a day like today of all days.  A day where Christ our Saviour was born.  He who was born by the "grace of GOD" through the angel Gabriel much like an ART procedure.

So put that on your fork dear family and eat  it with whipped cream.

Friday, November 18, 2016

Searching for Doctors

I thought for sure that with the referral I received in the mail, from Tricare, yesterday that I had my appointment for the gastro doctor in the bag.  Nope! Not even close.  I mean the distance I had to drive to this place was nuts but it was in network so I had no choice, right?

I called the doctor's office.  Turns out she is no longer working at this particular office.  Oh jeez!  Great.  I asked the receptionist if the other two gastro docs would take the referral as it states that my referral is basically an open one as long as the provider is in my network.  Not only would she not take it, she made me go call my insurance office too.  Turns out the doctor she is the receptionst for does take my insurance.  Well they can bite my buttons.  I searched and found a different doctor closer.  The reason why Tricare didn't pick this doctor first is that this one is more costly.

I think I've complained before that Tricare is cheap!  Oh and that it doesn't attract quality doctors.  The first doctor they would have sent me to was only a 3 star rating.  Not very good for having practiced for 20 years.

I called the doctor that is closer.  I'm hoping that I'll hear back on Monday.  His office is only open M-Thursday.  He also only a 3 star rating.  My insurance is not going to attract the top doctors.  I'm not sure what insurance will.

Good news is that I have a lab draw on Monday.  Tuesday I have my contrast CT to see what is going on in the left side of my upper abdomen.  I have pain.  It hurts to the touch.  It is now making it difficult to eat.  I cannot get comfortable when I sleep.

So tired my brain is having difficulty typing.