I've been a very bad blogger. No I'm not going to shut down the blog. I've just been very sick.
My liver of course is getting worse. The itching is driving me nuts. Itching is from the build up of bile salts.
Eily is growing like a weed. She is already wearing 4 and 5 in clothing. The rain coat I just bought her is a 5/6. She won't even be 3 for a few more months. How much taller is she going to get before she hits 3?
I'm so tired. I fall asleep on the floor during play time with Eily. Yes, even when she is bouncing on my back. I'm just so exhausted that I don't even care that it hurts. I just can't get up to push her off of me.
Exciting news is that we are getting ready for a move to Hawaii. I can't wait for that. There will be a good transplant hospital nearby. But I still have to get even sicker before they can do the transplant. This fatigue I feel is nothing. I'm still only a MELD score of a 7 at 6 months ago. I'll be getting a lab draw this coming week and my next Hep A shot by Friday.
Wish us luck. I'll try to blog more often. Just so tired.
Here is a picture of me with Eily.
Now me with makeup where I try to hide the fatigue.