Thursday, May 25, 2017

Coming Down on Orders

It is that time again.  We are going to be moving. 

I know it feels like we just moved last year.  Um, we did.  We DID!

DH is about to graduate near the top of his class.

We no longer have to worry about this job being Class VII ultra sneaky sensitive ninja secret either.

That is a big relief.

The cat is now on his 120 day in house quarantine.  He had his FAVN test and we are waiting on those results.  Rabies shot was given last week.

Now it is all paperwork and more paperwork, and pictures and paperwork.

We are off to Paradise.

Yes we are going to do a PCS to Hawaii.

Three years in the beautiful Sandwich Islands.

I'll have my own car.  E will be in pre school. 

I'll have a liver transplant hospital on the Island too if I need it.


Saturday, May 6, 2017

Missing Days and now a Month

I've been a very bad blogger.  No I'm not going to shut down the blog.  I've just been very sick.

My liver of course is getting worse.  The itching is driving me nuts.  Itching is from the build up of bile salts.

Eily is growing like a weed.  She is already wearing 4 and 5 in clothing.  The rain coat I just bought her is a 5/6.  She won't even be 3 for a few more months.  How much taller is she going to get before she hits 3?

I'm so tired.  I fall asleep on the floor during play time with Eily.  Yes, even when she is bouncing on my back.  I'm just so exhausted that I don't even care that it hurts.  I just can't get up to push her off of me.

Exciting news is that we are getting ready for a move to Hawaii.  I can't wait for that.  There will be a good transplant hospital nearby.  But I still have to get even sicker before they can do the transplant.  This fatigue I feel is nothing.  I'm still only a MELD score of a 7 at 6 months ago.  I'll be getting a lab draw this coming week and my next Hep A shot by Friday.

Wish us luck.  I'll try to blog more often.  Just so tired.

Here is a picture of me with Eily.
I cut my hair really short so that I don't have to fight with the curly hair tangles.  Eily's hair is still long.

Now me with makeup where I try to hide the fatigue.
The lighting I used also helps make me look healthier too rather than the natural sun I was using in the first photo.  And I've lost almost 10 pounds from the first photo to this photo I took last week.  Took just 2 weeks to lose it and I didn't do anything differently in my food intake either.  Got to love being sick.

Thursday, March 9, 2017

Frittering Away the Days

Time is slipping away.  I have a normal routine and it drags me out.  I'm gaining weight.  I've now gained about 20 pounds in bloat.  The whole IBS vicious cycle with the water pill, potassium and IBS meds is wrecking me.  I'm not really sure what real energy is.  I thought I had a bit of it last week only to plunge back into the funk once again.  Maybe I used up all the energy I had to spare last week?

DH is doing quite well in school.  He is still in the running for honor graduate.  Geez that thunderstorm sounds like it is going to blow the roof off.  Sorry for that bit of interruption.  Brain see or hears something it processes and off it goes on yet another path.  So yes DH is doing well.  Today he called me from the school house to help him fill out his dream sheet.  The dream sheet is where military personnel write down their list of dream assignments.  It doesn't mean they'll get it, but it is a dream sheet.  We put Hawaii at the top of the sheet.  Who wouldn't want to go there for a few years?  They have a good liver transplant hospital there too.

E is doing well.  I can't believe that in just a few months she'll be 3 years old.  Where did my baby go?  By the time we move to the next duty station we'll be able to enroll her in preschool.  She continues to spout off large words and long sentences.  Her math skills are improving too.  She has good manners and is rarely a bad child at restaurants.  She isn't perfect.  She is stubborn, and wants to do things her way.  She still has her daddy wrapped around her little finger too.

Wednesday, January 4, 2017

Liver Biopsy Results

Steatohepatitis mild.  It has improved since the very first diagnosis of moderate I'm pleased to say.

However the labs showed that my MELD score has gone up and I'm now at a 7.

I did bleed out during the procedure which rarely happens.

Such is life.  It is a see saw.  I improved but I didn't.  I'm okay with that.  I'm not going to die today unless something really bad happens like I trip over a match and impale and/or cut a major organ or artery.  Likelihood of that is 0.4%.