Saturday, May 6, 2017

Missing Days and now a Month

I've been a very bad blogger.  No I'm not going to shut down the blog.  I've just been very sick.

My liver of course is getting worse.  The itching is driving me nuts.  Itching is from the build up of bile salts.

Eily is growing like a weed.  She is already wearing 4 and 5 in clothing.  The rain coat I just bought her is a 5/6.  She won't even be 3 for a few more months.  How much taller is she going to get before she hits 3?

I'm so tired.  I fall asleep on the floor during play time with Eily.  Yes, even when she is bouncing on my back.  I'm just so exhausted that I don't even care that it hurts.  I just can't get up to push her off of me.

Exciting news is that we are getting ready for a move to Hawaii.  I can't wait for that.  There will be a good transplant hospital nearby.  But I still have to get even sicker before they can do the transplant.  This fatigue I feel is nothing.  I'm still only a MELD score of a 7 at 6 months ago.  I'll be getting a lab draw this coming week and my next Hep A shot by Friday.

Wish us luck.  I'll try to blog more often.  Just so tired.

Here is a picture of me with Eily.
I cut my hair really short so that I don't have to fight with the curly hair tangles.  Eily's hair is still long.

Now me with makeup where I try to hide the fatigue.
The lighting I used also helps make me look healthier too rather than the natural sun I was using in the first photo.  And I've lost almost 10 pounds from the first photo to this photo I took last week.  Took just 2 weeks to lose it and I didn't do anything differently in my food intake either.  Got to love being sick.

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