I'm fatter than last week by two pounds and I'm totally exhausted. It seems that not enough sleep on Saturday night caused my metabolism to crash. I went into fat storage mode.
I also fell asleep in the tub last night. That just isn't good. I would jerk awake because I was afraid of drowning only to fall asleep again. I put my book outside of the tub and just decided to soak. That was stupid as I slid down more in the tub and well you can see where it could lead to. I got out before my normal time of a 30 minute soak.
I'm still cranky. I did test this morning and it was negative. I'm just fat and getting ready to cycle again. Its only CD20 but still I don't feel like this natural cycle with two of my own eggs was a success. I know the odds were against me anyway to begin with. So from here on out I'm going to attribute the symptoms to PMS.
I called Tricare and scheduled my re-entry appointment into the gastroenterologist office. I have to bring my driver's schedule with me and a complete list of my medicines too. Fun part is going to be trying to figure out who will be my driver. I don't even know if J will still be here for my scoping let alone the initial interview which is late next month.
I also called the Respite Care EFMP ACS coordinator and left her a message explaining that I just got my summary sheet on Friday so that there is no way that they could have denied me without the application being properly supported with the data. I'll probably get a call from her by the end of the week.
Next call was to the REI clinic. Nurse N called me back just now and asked why I wanted the CD 21 test. She is going to ask Dr.C. if he feels its necessary since Dr. B. is out today. They were all quite surprised that I ovulated on my own and two eggs at that. Nurse N did ask if I had a reason why I wanted the test and I explained to her that Maj D (an RE doctor of my past) said that the reason why I miscarried the twins in 1996 was due to low progesterone and poorly functioning corpus luteul cysts. Back then I had ovulated two eggs,one from each ovary. So Nurse N will get back to me. She knows that I still have endometrium and PIO here at home and said I would be put back on it if the test showed anything. However, she said that they didn't believe that the tests were all that definitive for showing that a possible pregnancy might need support. I told her that I realize that its still too early to have a valid home test here, negative or positive.
So this is where I sit. I'm in limbo on all grounds. I wish I had a set of orders with a deployment date rather than just the fact that J knows he is on the list. He could leave in a week or 2 months. I just wish I knew when! I'm guessing though that he is going to get screwed out of his block leave, which means no vacation together for us.
Second load of laundry is in the washer and I'd better go check it because it got way too quiet. Old machine from 1995.
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Showing posts with label EFMP. Show all posts
Showing posts with label EFMP. Show all posts
Monday, February 27, 2012
I Can Tell Its Monday
Labels:
ACS,
Army Wife,
BFN,
CD 20,
EFMP,
Infertility,
laundry,
miscarriage,
REI,
respite care,
US ARMY
Sunday, February 26, 2012
Not Quite What I Wanted
Photo by me and yes I enhanced it.
Its Sunday once again which means in less than 2 hours I'll be headed out to church. Thank God I won't be driving.
I'm tired. I didn't sleep much last night. J and I were woken up by one of my nightmares at 0200hrs. Ugh I hate PTSD.
Yesterday we went grocery shopping at two store, stopped by the Exchange to get more potting soil, organic seeds and peet pellets. Later today I'll be planting more of my seeds in preparation for this years hopefully bountiful harvest. I'm trying my hand this year at three new crops: potatoes yellow and purple, beets, and radishes. The rest of my crops will be sunflowers, nasturtiums, peppers, onions, tomatoes, strawberries, rhubarb, and various herbs and most flowers edible in my garden except for the the existing ones which I didn't plant and one or two just for show.
Sorry if my post seems a little iffy I'm quite fatigued. J is anxious about the upcoming deployment. We are both on edge not knowing how much time we have left together. It could be a week or two months. But he will be leaving soon and I hate it.
I hope that my garden will keep me busy for most of the summer. But I will have to be a realist, this is The Evergreen State which means moss, mold, and mildew the three shades of greenish black associated with plentiful rain. Last year my tomatoes never ripened. I had hard green tomatoes at the end of August. I'm hoping for more than 2 days of summer this year.
I do plan on getting into my other pursuits. I might reopen my etsy shop. Its been closed for almost four years. I'll start completely over with a new name and some of my old stock of jewelry, new soaps, lip balms, bath salts, organic crocheted wash cloths, and so on. But that will be quite an undertaking and I'm not sure I'll be up to it or not.
So my other plan is to get back to my art work. I'd like to do daily water colors. I need the practice as I'm sorely lacking in my skills at the moment. I need to build up my strength in my hands. The carpal tunnel makes writing and drawing painful after a few hours. Okay sometimes after a few lines.
If it turns out that I get a unicorn before J has to leave I'll need his help in rearranging furniture and my craft boxes. I refuse to lift anything myself that is over 10 pounds. Due to my back injury I'm not supposed to be lifting more than that amount any way.
Forget RESPITE CARE. I've already been denied twice and they haven't even seen my EFMP summary sheet that I just got in the mail on Friday. Yes, the one I'm supposed to submit to the ACS to see if I qualify. I got an email from ACS saying that my daughter Penny isn't going to get care. When did I have a child? I responded immediately to the person that emailed me and told her there is some mistake. She emailed me back and said they would correct my denial letter. Yes, they corrected it and still didn't realize I'd yet to submit the paperwork to even get reviewed. Got to love the Army! So no I won't be getting any help while J is deployed. Even though 2 of my 6 listed medical conditions is considered to be severe after being reviewed by medical board. I need only one condition to be listed as severe to be allowed Respite Care. Of the rest one condition is moderate and three others are mild. I'm listed as having to have a hepa filter, air conditioning, one story house and use of a cane to ambulate. We have a one story house and I use my cane but there is no a/c or hepa filter in our base home.
Okay enough b*tching for today.
Symptoms of PMS or Pregnancy for today:
Cranky
Sore breasts
Nausea
Tenderness in the pelvic region more centered around uterus
Headache yesterday and again this morning
Lower back pain
Forgetfulness
Clumsiness
All of the above could be related to any of my medical issues. I'll let you figure out this puzzle.
Its Sunday once again which means in less than 2 hours I'll be headed out to church. Thank God I won't be driving.
I'm tired. I didn't sleep much last night. J and I were woken up by one of my nightmares at 0200hrs. Ugh I hate PTSD.
Yesterday we went grocery shopping at two store, stopped by the Exchange to get more potting soil, organic seeds and peet pellets. Later today I'll be planting more of my seeds in preparation for this years hopefully bountiful harvest. I'm trying my hand this year at three new crops: potatoes yellow and purple, beets, and radishes. The rest of my crops will be sunflowers, nasturtiums, peppers, onions, tomatoes, strawberries, rhubarb, and various herbs and most flowers edible in my garden except for the the existing ones which I didn't plant and one or two just for show.
Sorry if my post seems a little iffy I'm quite fatigued. J is anxious about the upcoming deployment. We are both on edge not knowing how much time we have left together. It could be a week or two months. But he will be leaving soon and I hate it.
I hope that my garden will keep me busy for most of the summer. But I will have to be a realist, this is The Evergreen State which means moss, mold, and mildew the three shades of greenish black associated with plentiful rain. Last year my tomatoes never ripened. I had hard green tomatoes at the end of August. I'm hoping for more than 2 days of summer this year.
I do plan on getting into my other pursuits. I might reopen my etsy shop. Its been closed for almost four years. I'll start completely over with a new name and some of my old stock of jewelry, new soaps, lip balms, bath salts, organic crocheted wash cloths, and so on. But that will be quite an undertaking and I'm not sure I'll be up to it or not.
So my other plan is to get back to my art work. I'd like to do daily water colors. I need the practice as I'm sorely lacking in my skills at the moment. I need to build up my strength in my hands. The carpal tunnel makes writing and drawing painful after a few hours. Okay sometimes after a few lines.
If it turns out that I get a unicorn before J has to leave I'll need his help in rearranging furniture and my craft boxes. I refuse to lift anything myself that is over 10 pounds. Due to my back injury I'm not supposed to be lifting more than that amount any way.
Forget RESPITE CARE. I've already been denied twice and they haven't even seen my EFMP summary sheet that I just got in the mail on Friday. Yes, the one I'm supposed to submit to the ACS to see if I qualify. I got an email from ACS saying that my daughter Penny isn't going to get care. When did I have a child? I responded immediately to the person that emailed me and told her there is some mistake. She emailed me back and said they would correct my denial letter. Yes, they corrected it and still didn't realize I'd yet to submit the paperwork to even get reviewed. Got to love the Army! So no I won't be getting any help while J is deployed. Even though 2 of my 6 listed medical conditions is considered to be severe after being reviewed by medical board. I need only one condition to be listed as severe to be allowed Respite Care. Of the rest one condition is moderate and three others are mild. I'm listed as having to have a hepa filter, air conditioning, one story house and use of a cane to ambulate. We have a one story house and I use my cane but there is no a/c or hepa filter in our base home.
Okay enough b*tching for today.
Symptoms of PMS or Pregnancy for today:
Cranky
Sore breasts
Nausea
Tenderness in the pelvic region more centered around uterus
Headache yesterday and again this morning
Lower back pain
Forgetfulness
Clumsiness
All of the above could be related to any of my medical issues. I'll let you figure out this puzzle.
Wednesday, February 8, 2012
Starting Over The Hard Way
Today I got my wicked red witch of a visitor. Oh I knew it was coming. But before we get into that I'll tell you what I am doing to prepare for the WTF appointment later this month.
I guess you could say I'm carb loading. Not that I want to but really it seems as though I have no choice. If I want to get the proper testing done I need to be prepared. I know I must have a sensitivity to gluten, wheat, bran and oats. Whenever I eat the stuff I end up in the bathroom and its not pleasant. However because I've been eliminating it from my diet over the past 6 months, thus just one more reason why I've lowered my blood pressure and lost the weight, I won't show positive at all for the Celiac Disease if I did have it. No in order to show positive or have proper testing I have to be eating the stuff that makes me sick for at least 10-14 days. I guess its a good thing that I researched it a bit, looked through my old medical papers. and asked my mom about the family medical history. I have just enough time before the appointment to get the crap back into my system. But I'll have to tell them that I was abstaining from it for half the year as that might still mess with the results a bit.
Today I'm baking bread. If there is just one way that I can still control some of the sodium I ingest daily its through my own efforts. Right now the dough is rising in the kitchen. I had to turn the heat up in the house from 62 to 67 and turn the oven on two hours early to warm the kitchen enough to get the yeast to work. I'm going to hate the Minol bill when it comes in.
Back to why my own bread. If you've ever taken the time to read packages you'll notice that most breads are 120 mg of sodium to about 200 mg of sodium per slice. Since I'm on a sodium restricted diet of 1000 mg a day I have to cut corners. My bread recipe uses 1 1/2 tsp of salt in it for the two loaves. I use Celtic Sea Salt which is about 550 mg per teaspoon. Math time 775 mg for the 1 1/2 tsp. divide that by two loaves 387.5 mg per loaf. I get about 10 slices out of each loaf so that is about 38.75 mg per slice. No other ingredients in this recipe have sodium in them. So I could say pig out and eat a whole loaf of bread and not worry about my sodium content. Note that I also use unsalted butter when I eat the bread or other low sodium and no sodium spreads.
Oh I know I'm going to be hurting. Gross factor here: by the end of the day I'll be wishing for loperimide and a large tube of preparation-H.
No choice it has to be done.
Now for CD 1. Its here. It hurts. I tried to call the RE nurse to let her know about it but I only got the voice mail with her promising to get back to me asap. Its been over 2 hours. I may or may not hear from her later today.
Yesterday I went to see my PCM. I wrote about that a bit. I was put back on my nebulizer and the flovent to go with my flonase and emergency inhaler. I guess he heard something and wasn't pleased. Well he wouldn't be very pleased with me right now if he knew I went off it all and ditched my vitamins too. I'm only staying on the high blood pressure medicine right now. All the rest of my medicines could affect the upcoming tests I'm going to demand to have done. Steroids are notorious for messing with results. I have three prescribed to me right now. I'm noot going to take them until the tests are done and the results in hand. I need to know why my body is rejecting or killing off the embryos.
I just hope that the Army medical staff takes me seriously. They should, I have enough wrong with me that I should be seeing several specialists monthly and my PCM monthly too according to my EFMP forms.
I guess you could say I'm carb loading. Not that I want to but really it seems as though I have no choice. If I want to get the proper testing done I need to be prepared. I know I must have a sensitivity to gluten, wheat, bran and oats. Whenever I eat the stuff I end up in the bathroom and its not pleasant. However because I've been eliminating it from my diet over the past 6 months, thus just one more reason why I've lowered my blood pressure and lost the weight, I won't show positive at all for the Celiac Disease if I did have it. No in order to show positive or have proper testing I have to be eating the stuff that makes me sick for at least 10-14 days. I guess its a good thing that I researched it a bit, looked through my old medical papers. and asked my mom about the family medical history. I have just enough time before the appointment to get the crap back into my system. But I'll have to tell them that I was abstaining from it for half the year as that might still mess with the results a bit.
Today I'm baking bread. If there is just one way that I can still control some of the sodium I ingest daily its through my own efforts. Right now the dough is rising in the kitchen. I had to turn the heat up in the house from 62 to 67 and turn the oven on two hours early to warm the kitchen enough to get the yeast to work. I'm going to hate the Minol bill when it comes in.
Back to why my own bread. If you've ever taken the time to read packages you'll notice that most breads are 120 mg of sodium to about 200 mg of sodium per slice. Since I'm on a sodium restricted diet of 1000 mg a day I have to cut corners. My bread recipe uses 1 1/2 tsp of salt in it for the two loaves. I use Celtic Sea Salt which is about 550 mg per teaspoon. Math time 775 mg for the 1 1/2 tsp. divide that by two loaves 387.5 mg per loaf. I get about 10 slices out of each loaf so that is about 38.75 mg per slice. No other ingredients in this recipe have sodium in them. So I could say pig out and eat a whole loaf of bread and not worry about my sodium content. Note that I also use unsalted butter when I eat the bread or other low sodium and no sodium spreads.
Oh I know I'm going to be hurting. Gross factor here: by the end of the day I'll be wishing for loperimide and a large tube of preparation-H.
No choice it has to be done.
Now for CD 1. Its here. It hurts. I tried to call the RE nurse to let her know about it but I only got the voice mail with her promising to get back to me asap. Its been over 2 hours. I may or may not hear from her later today.
Yesterday I went to see my PCM. I wrote about that a bit. I was put back on my nebulizer and the flovent to go with my flonase and emergency inhaler. I guess he heard something and wasn't pleased. Well he wouldn't be very pleased with me right now if he knew I went off it all and ditched my vitamins too. I'm only staying on the high blood pressure medicine right now. All the rest of my medicines could affect the upcoming tests I'm going to demand to have done. Steroids are notorious for messing with results. I have three prescribed to me right now. I'm noot going to take them until the tests are done and the results in hand. I need to know why my body is rejecting or killing off the embryos.
I just hope that the Army medical staff takes me seriously. They should, I have enough wrong with me that I should be seeing several specialists monthly and my PCM monthly too according to my EFMP forms.
Labels:
Army Wife,
asthma,
CD 1,
Celiac Disease,
EFMP,
endometriosis,
high blood pressure,
sodium,
US ARMY
Wednesday, February 1, 2012
Seeing Things
0400 hrs and I'm up just before the alarm clock is sounding its wake up for J. Time for medications. First the blood pressure medicine, then I pee in a cup, finally the Endometrin. I tested this morning.
0800 hrs. I got up again from bed. Lazy me, at 0400 hrs after getting J off to work I head back to bed for a bit. I go pee in a cup.
I tested twice this morning before I had to head off to see my doctor for my EFMP (exceptional family member program) update. Well it wasn't really a doctor I got to see but a PA. This particular one has an attitude. But the paperwork got updated and now I just need my psychologist to sign off on her part then the next step is submitting it for approval. Luckily this should only have to be updated every three years.
I weighed myself this morning before my appointment. Same weight for the past three days. I guess I'm done losing weight and now I'm just maintaining.
My blood pressure at the clinic was 120/65 awesome. I'm doing well on keeping it down for the most part. I have to keep it down as I'm already a high risk pregnancy with all my medical issues.
I walked into two door casings today. Well rather hit the back of my shoulder on them with my balance issues. Breasts are a bit tender and full today. Pelvis isn't hurting as much, few small pains but not much. But I'm keeping hope this will work out and I'll get my baby.
Oh and as for the two tests, well its as I figured, its a bit early still to really tell. But both times were really faint lines. If I hadn't tested for the second time I wouldn't have been able to tell it was so faint. Remember I still don't have a Beta until Monday. So tomorrow I'll be testing again.
Now as for the photo above. I have an idea. I've been thinking of it for a while and I mentioned it before to my friend Alex. I think we were chatting about nursery ideas over the weekend and I was trying to think of things to get her later on as a gift. Meanwhile I told her what I had in mind for the nursery of my dreams.
Yes, I realize all of this could very well go horribly wrong. But, I have to keep hope. For years now I've been planning and plotting. I've embroidered several designs of wizards, sun and moon and dragon things to be framed for the nursery. I was thinking about painting the walls, partly to look like castle walls and putting the glow in the dark stars on the ceiling. Its not that hard to paint and I've seen the step by steps to do it but it is time consuming. Oh and the bedroom door is brown so it would be easy to add some mock, easy to remove details to make it look like a castle door. J loves the color grey so he'll be happy with my idea but not so happy when I hand him a paint brush I suspect. I was thinking of making thermal curtains with sun and moons on them too.
I figure it would be a great nursery for our Princess or Knight. It would be a sort of grow with you room since we'll probably only be stationed here until just before kindergarten begins. What do you think?
0800 hrs. I got up again from bed. Lazy me, at 0400 hrs after getting J off to work I head back to bed for a bit. I go pee in a cup.
I tested twice this morning before I had to head off to see my doctor for my EFMP (exceptional family member program) update. Well it wasn't really a doctor I got to see but a PA. This particular one has an attitude. But the paperwork got updated and now I just need my psychologist to sign off on her part then the next step is submitting it for approval. Luckily this should only have to be updated every three years.
I weighed myself this morning before my appointment. Same weight for the past three days. I guess I'm done losing weight and now I'm just maintaining.
My blood pressure at the clinic was 120/65 awesome. I'm doing well on keeping it down for the most part. I have to keep it down as I'm already a high risk pregnancy with all my medical issues.
I walked into two door casings today. Well rather hit the back of my shoulder on them with my balance issues. Breasts are a bit tender and full today. Pelvis isn't hurting as much, few small pains but not much. But I'm keeping hope this will work out and I'll get my baby.
Oh and as for the two tests, well its as I figured, its a bit early still to really tell. But both times were really faint lines. If I hadn't tested for the second time I wouldn't have been able to tell it was so faint. Remember I still don't have a Beta until Monday. So tomorrow I'll be testing again.
Now as for the photo above. I have an idea. I've been thinking of it for a while and I mentioned it before to my friend Alex. I think we were chatting about nursery ideas over the weekend and I was trying to think of things to get her later on as a gift. Meanwhile I told her what I had in mind for the nursery of my dreams.
Yes, I realize all of this could very well go horribly wrong. But, I have to keep hope. For years now I've been planning and plotting. I've embroidered several designs of wizards, sun and moon and dragon things to be framed for the nursery. I was thinking about painting the walls, partly to look like castle walls and putting the glow in the dark stars on the ceiling. Its not that hard to paint and I've seen the step by steps to do it but it is time consuming. Oh and the bedroom door is brown so it would be easy to add some mock, easy to remove details to make it look like a castle door. J loves the color grey so he'll be happy with my idea but not so happy when I hand him a paint brush I suspect. I was thinking of making thermal curtains with sun and moons on them too.
I figure it would be a great nursery for our Princess or Knight. It would be a sort of grow with you room since we'll probably only be stationed here until just before kindergarten begins. What do you think?
Wednesday, November 17, 2010
No Appointments Available
After a sleepless night due to sinus pain and a jaw that is locking up I decided to call the Tricare Appointments Line. I was hoping to get in today or at the latest by Friday. Wishful thinking on my part. Tricare informs me that the soonest they could get me in to see a provider would be the 30th of November. Wow, really? The clerk on the phone tells me that my other option would be the Emergency Department. I'm a category 4 or 5 with this sinus infection and locking jaw, I have TMJ.
Okay so no appointment for me. My husband was at PT this morning as most soldiers are at 0700hrs. So I walked the one mile in the rain to the Emergency Department. I left a note for my husband on the kitchen counter with the light on telling him where he could find me if need be and the reason why of course. Yes, I did walk there and no I didn't take my cane with me. The cane would have slowed me down. Yes I got talked at for not using my cane when I got there.
At 0830hrs my husband shows up at the Emergency Department looking for me. I was willing to walk home. I know that he has a class today and I didn't want him to be late for it. But he called his first line and told him the situation. They guy was nice enough to let my husband be late to class today so that he could take me home.
Thankfully within ten minutes of my husband arriving I was discharged. Off to the pharmacy. Luck was on my side with the pharmacy this morning and I only waited ten minutes to get my medicines. Levaquin, Isolep, Mucinex D, and Tylenol were prescribed but of course they don't dispense all that and I'm smart enough to keep the over-the-counter medicines on hand at home. I don't like taking Levaquin as it messes up my stomach but I'm allergic to three types of antibiotics so I just deal with it. The Isolep mouthwash is a new one on me. It contains Diphenhydramine and Lidocane, they compound it themselves at the pharmacy. Hopefully I'll be able to sleep tonight. I was diagnosed with Acute Sinusitis.
My instructions for discharge were to secure an appointment in 2-3 days. So when I got home I called the appointment line again. Still no luck. Seriously? I mean I just got out of the ER! One would think that would put me at a higher priority but no.
Tricare really needs to be revamped. I'm not sure what benefits it does allow now since I'm being denied appointments and haven't seen my Primary Care Provider in a year.
Men and women sign on to the military knowing that if they have family members they will be covered by insurance through the military. But what they aren't told is that the family members don't get the care that is necessary and often go without diagnostic tests because of budget cuts. Tricare no longer allows yearly Pap exams ladies. If you have had two negative Pap exams in a row you are now put on the every other year list for Pap exams, they did this to me just this year and there is cancer in my family. Nor is the Pap exam done by the OB/GYN any longer, its now done by the PA or Nurse on duty, unless you are active duty then you get to see the OB/GYN. This would not be tolerated in civilian medicine. Too many budget cuts to our medical have caused the family members to go untreated.
A year ago they found just one cyst on my thyroid. This year I now have two and they've decided I can go three to five years before I'll be seen for it again. What is wrong with this picture. My cyst multiplied. I had an aunt have to have her thyroid removed. Hello, family history. I should be monitored once a year.
On my EFMP paperwork it states I should be seen by my Primary Care Provider once a month, not the PA or Nurse. It also lists the specialists I'm supposed to see and how often. Why is it so hard for me to get the proper care?
Why are there no appointments available for family members within a reasonable amount of time for urgent care?
I follow the rules and avoid the ER and according to their slide show I try to make an appointment with my Primary but to no avail. Sheesh!
Okay so no appointment for me. My husband was at PT this morning as most soldiers are at 0700hrs. So I walked the one mile in the rain to the Emergency Department. I left a note for my husband on the kitchen counter with the light on telling him where he could find me if need be and the reason why of course. Yes, I did walk there and no I didn't take my cane with me. The cane would have slowed me down. Yes I got talked at for not using my cane when I got there.
At 0830hrs my husband shows up at the Emergency Department looking for me. I was willing to walk home. I know that he has a class today and I didn't want him to be late for it. But he called his first line and told him the situation. They guy was nice enough to let my husband be late to class today so that he could take me home.
Thankfully within ten minutes of my husband arriving I was discharged. Off to the pharmacy. Luck was on my side with the pharmacy this morning and I only waited ten minutes to get my medicines. Levaquin, Isolep, Mucinex D, and Tylenol were prescribed but of course they don't dispense all that and I'm smart enough to keep the over-the-counter medicines on hand at home. I don't like taking Levaquin as it messes up my stomach but I'm allergic to three types of antibiotics so I just deal with it. The Isolep mouthwash is a new one on me. It contains Diphenhydramine and Lidocane, they compound it themselves at the pharmacy. Hopefully I'll be able to sleep tonight. I was diagnosed with Acute Sinusitis.
My instructions for discharge were to secure an appointment in 2-3 days. So when I got home I called the appointment line again. Still no luck. Seriously? I mean I just got out of the ER! One would think that would put me at a higher priority but no.
Tricare really needs to be revamped. I'm not sure what benefits it does allow now since I'm being denied appointments and haven't seen my Primary Care Provider in a year.
Men and women sign on to the military knowing that if they have family members they will be covered by insurance through the military. But what they aren't told is that the family members don't get the care that is necessary and often go without diagnostic tests because of budget cuts. Tricare no longer allows yearly Pap exams ladies. If you have had two negative Pap exams in a row you are now put on the every other year list for Pap exams, they did this to me just this year and there is cancer in my family. Nor is the Pap exam done by the OB/GYN any longer, its now done by the PA or Nurse on duty, unless you are active duty then you get to see the OB/GYN. This would not be tolerated in civilian medicine. Too many budget cuts to our medical have caused the family members to go untreated.
A year ago they found just one cyst on my thyroid. This year I now have two and they've decided I can go three to five years before I'll be seen for it again. What is wrong with this picture. My cyst multiplied. I had an aunt have to have her thyroid removed. Hello, family history. I should be monitored once a year.
On my EFMP paperwork it states I should be seen by my Primary Care Provider once a month, not the PA or Nurse. It also lists the specialists I'm supposed to see and how often. Why is it so hard for me to get the proper care?
Why are there no appointments available for family members within a reasonable amount of time for urgent care?
I follow the rules and avoid the ER and according to their slide show I try to make an appointment with my Primary but to no avail. Sheesh!
Saturday, November 6, 2010
Fertility Break and Tricare Rant
Tuesday I was to call Tricare to schedule a fertility consult. Scratches head as to why I needed one yet again as the last one wasn't that long ago. I mean just give me an appointment already. After the nurse called me yesterday with the results, of which were negative, the fertility clinic calls me.
The fertility clinic informs me I can't get in to see them until January and that they don't have a schedule up for January yet. So I tell them that I'll use my clomid until I see them. They tell me I can't do that and that I have to be monitored with ultrasound and blood work.
In all the times I've used fertility drugs and been under the care of fertility doctors I've yet to have an ultrasound except to prove that I was indeed pregnant. When I was on fertility shots I never had an ultrasound.
I explain to the clinic nurse that called that I'm fine taking this medicine on my own and that I'll just go in for the blood work when I'm supposed to. I've been on it before and have been instructed that I'll be fine to take it, by their doctor no less, when my husband got home from his deployment of which I'm doing now. She argues we me about their policy and that fertility is not a benefit its a privilege that they can grant. So they are now the guardians of my reproduction rights? I'm not allowed to reproduce without their permission?
Just before the deployment I had my last fertility work up at this installation. I'm not a new patient.
Me: So if I take the clomid are the fertility police going to arrest me?
Her: No. But we don't want you taking it without our supervision. Please hold.
She comes back on the line and all of a sudden has an appointment for me on the 3rd of December. During that hold she looked over my chart and realized I had already gone through the HSG, blood work, ultrasound, and for the spouse the semen analysis.
I had explained to her before the above that the only reason we stopped trying was that my husband had deployed and we couldn't bank his semen. The military does not pay for banking of semen. They do not pay for IVF or IUI.
Me: I thought my insurance allowed me to have the clomid.
Her: Its a privilege not a benefit.
So two years ago at West Point it was a benefit. Talk about budget cuts. Two years ago I was informed that they would pay for banking my spouses semen. Not anymore. I'm starting to wonder what Tricare does cover because the quality of care that I receive is not at the highest it could or should be. I haven't seen my PCM, who is a real doctor, since before my husband deployed. I keep getting pawned off to the nurse or PA. I was informed yesterday that my PCM is now back at my clinic and has been for sometime. So why did the have a PA fill out my EFMP paperwork? The PA that messed up the paperwork!
I think I had better medical coverage when I was using Family Health Plus in college. At least I got to see a doctor, a real doctor at that, and had tests preformed in a timely manner. I've yet to get that referral to see the neurologist from the auto accident of 2 year years ago. My doctor in NY told me I had to see one. Its in my records that I was to be referred to one as soon as I got to this duty station. Here, the majority of health care providers on post just don't care. I can think of only one, KK, and she was my physical therapist. She is the exception to the rule. I think if Tricare found out she had a heart they'd fire her.
After my little dialogue with the nurse she gives me an appointment for December. I'm in finally. I'll let them monitor me. Until then I had to promise to not use the fertility drugs. The nurse was quite upset to find that that last doctor gave me a four months supply of the drug. Well I'm guessing he thought I was smart enough to know how to take it on my own with the home tests being just dandy. She figures not. Oh well. I have the appointment now and will keep it. They have two doctors on staff now that deal just with fertility. I was lucky to even get an appointment.
The fertility clinic informs me I can't get in to see them until January and that they don't have a schedule up for January yet. So I tell them that I'll use my clomid until I see them. They tell me I can't do that and that I have to be monitored with ultrasound and blood work.
In all the times I've used fertility drugs and been under the care of fertility doctors I've yet to have an ultrasound except to prove that I was indeed pregnant. When I was on fertility shots I never had an ultrasound.
I explain to the clinic nurse that called that I'm fine taking this medicine on my own and that I'll just go in for the blood work when I'm supposed to. I've been on it before and have been instructed that I'll be fine to take it, by their doctor no less, when my husband got home from his deployment of which I'm doing now. She argues we me about their policy and that fertility is not a benefit its a privilege that they can grant. So they are now the guardians of my reproduction rights? I'm not allowed to reproduce without their permission?
Just before the deployment I had my last fertility work up at this installation. I'm not a new patient.
Me: So if I take the clomid are the fertility police going to arrest me?
Her: No. But we don't want you taking it without our supervision. Please hold.
She comes back on the line and all of a sudden has an appointment for me on the 3rd of December. During that hold she looked over my chart and realized I had already gone through the HSG, blood work, ultrasound, and for the spouse the semen analysis.
I had explained to her before the above that the only reason we stopped trying was that my husband had deployed and we couldn't bank his semen. The military does not pay for banking of semen. They do not pay for IVF or IUI.
Me: I thought my insurance allowed me to have the clomid.
Her: Its a privilege not a benefit.
So two years ago at West Point it was a benefit. Talk about budget cuts. Two years ago I was informed that they would pay for banking my spouses semen. Not anymore. I'm starting to wonder what Tricare does cover because the quality of care that I receive is not at the highest it could or should be. I haven't seen my PCM, who is a real doctor, since before my husband deployed. I keep getting pawned off to the nurse or PA. I was informed yesterday that my PCM is now back at my clinic and has been for sometime. So why did the have a PA fill out my EFMP paperwork? The PA that messed up the paperwork!
I think I had better medical coverage when I was using Family Health Plus in college. At least I got to see a doctor, a real doctor at that, and had tests preformed in a timely manner. I've yet to get that referral to see the neurologist from the auto accident of 2 year years ago. My doctor in NY told me I had to see one. Its in my records that I was to be referred to one as soon as I got to this duty station. Here, the majority of health care providers on post just don't care. I can think of only one, KK, and she was my physical therapist. She is the exception to the rule. I think if Tricare found out she had a heart they'd fire her.
After my little dialogue with the nurse she gives me an appointment for December. I'm in finally. I'll let them monitor me. Until then I had to promise to not use the fertility drugs. The nurse was quite upset to find that that last doctor gave me a four months supply of the drug. Well I'm guessing he thought I was smart enough to know how to take it on my own with the home tests being just dandy. She figures not. Oh well. I have the appointment now and will keep it. They have two doctors on staff now that deal just with fertility. I was lucky to even get an appointment.
Labels:
Army Wife,
clomiphene citrate,
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Infertility,
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star trek,
Tricare,
ultrasound,
US ARMY
Friday, November 5, 2010
Watching The Grass Grow
Today is just one of those days that I might as well just sit and look out the window watching the grass grow. I'm waiting on a phone call from my doctor's office. I had to have blood work done this morning. The nurse practitioner told me that they would call me in two to three hours with the results. Its been three hours now. Maybe she meant two to three hours after their lunch was over?
Well after being scolded, I figured that would happen, for not properly informing them of my clomid usage I now have a referral to see the fertility specialist. Last appointment I brought in my current script of my clomid and showed it to my physician's assistant who informed me, as she was typing information into the computer on my chart, that I was okay to take the medicine as long as I knew how to take it. The instructions on how to take the prescribed medicine were on the container and I still had my information on the item, so I told her I was informed. My PA is pregnant. She is absent minded too. She was the one that forgot to fill out and sign one of the pages of my EFMP form a few weeks back. I rather figured she forgot to put into the system my fertility meds. I've been good all week keeping my blood pressure around 124/76.
Need I say that my blood pressure was up at the vitals check this am?
So now I sit here and wait. I need to know if the result is a positive or a negative. Negative I can start the next round of clomid if I get a bleed. If I don't then I'll have to make another appointment and ask them again for a script of Provera to get things going. I asked for the script of Provera today and she brushed me off. Its not like I'd go pick it up if the test is positive. My last fertility doctor had put in an order for the script so I'd have it on hand, but that was two years ago. If its positive then I'll have to go to the next stage and see a different specialist from the one they are referring me to. Yet another appointment is a sixty-six percent chance with the two factors of needing a medicine or a positive result.
Last night in a fit of frustration, my hair being naturally curly tangles easily, I gave myself a hair cut. It doesn't look at all bad, which is a surprising factor considering I gave myself layers. Now I just need to dye it again. I think I chopped off up to five inches in length on the top layer and maybe two inches on the bottom layer. It now flows nicely. Eventually I'll try to straighten it again with my appliance for that chore. I say chore since my hair is so darn thick it can take me around forty-five minutes to straighten.
My spouse is home early from work today. First time in a while. So he mowed the lawn and washed the car. Now he is seeding and fertilizing the lawn. The sky is quickly growing dark. We are going to get rain again for about four or five days straight starting tonight. I might just be able to watch the grass grow.
Well after being scolded, I figured that would happen, for not properly informing them of my clomid usage I now have a referral to see the fertility specialist. Last appointment I brought in my current script of my clomid and showed it to my physician's assistant who informed me, as she was typing information into the computer on my chart, that I was okay to take the medicine as long as I knew how to take it. The instructions on how to take the prescribed medicine were on the container and I still had my information on the item, so I told her I was informed. My PA is pregnant. She is absent minded too. She was the one that forgot to fill out and sign one of the pages of my EFMP form a few weeks back. I rather figured she forgot to put into the system my fertility meds. I've been good all week keeping my blood pressure around 124/76.
Need I say that my blood pressure was up at the vitals check this am?
So now I sit here and wait. I need to know if the result is a positive or a negative. Negative I can start the next round of clomid if I get a bleed. If I don't then I'll have to make another appointment and ask them again for a script of Provera to get things going. I asked for the script of Provera today and she brushed me off. Its not like I'd go pick it up if the test is positive. My last fertility doctor had put in an order for the script so I'd have it on hand, but that was two years ago. If its positive then I'll have to go to the next stage and see a different specialist from the one they are referring me to. Yet another appointment is a sixty-six percent chance with the two factors of needing a medicine or a positive result.
Last night in a fit of frustration, my hair being naturally curly tangles easily, I gave myself a hair cut. It doesn't look at all bad, which is a surprising factor considering I gave myself layers. Now I just need to dye it again. I think I chopped off up to five inches in length on the top layer and maybe two inches on the bottom layer. It now flows nicely. Eventually I'll try to straighten it again with my appliance for that chore. I say chore since my hair is so darn thick it can take me around forty-five minutes to straighten.
My spouse is home early from work today. First time in a while. So he mowed the lawn and washed the car. Now he is seeding and fertilizing the lawn. The sky is quickly growing dark. We are going to get rain again for about four or five days straight starting tonight. I might just be able to watch the grass grow.
Labels:
Army Wife,
clomiphen citrate,
EFMP,
Infertility,
lab work,
Provera,
US ARMY
Friday, October 29, 2010
Finishing touches
Husband's pumpkin
My pumpkin
The Halloween or Samhain, if you will, decorations are finally finished and put in their proper places. It took me several hours to carve my pumpkin and I'm not sure its as good as it could be. My design is one I modified from a photo of his units design. Its his patch with the arrowhead in the back ground and their number above. Last year was the first year I ever carved a pumpkin so I'm still learning about designs. I love how my husband just dug in with a knife and started carving away after the guts were removed.
I'm on my fourth load of laundry right now, that makes at least twelve loads this week, my husband sure does dirty a lot of clothes. Tonight if things go well I'll probably get around to making pumpkin bread and roasting some pumpkin seeds. Last year I kind of burnt a few of the seeds, but it was my first time with that too so I'm learning.
I got a call early this morning from the staffing place asking if I've yet chosen a new respite care provider. I explained to the guy on the phone that the one I tried out yesterday just didn't work out. He said that I'm listed as having the following three providers: TL, AS, and JJ. I told him I've never even heard of TL, I fired AS for being lazy and wanting to only sleep when she was supposed to be working and that I still have JJ but she lives rather far away to be at my beck and call. So he noted the changes. I'm still wondering who the heck that TL gal is. I've heard the name as in her first and middle being as such but only in my past. The TL I knew is actually TLS and she is a crack head now. I would not use her for several reason; the crack being the first, the second would be the distance as she is on the opposite coast, the third is that she is a thief. I guess the thief part could be on account of the crack addiction too.
On a different subject now, I have about another week to go until I can test to see if I'm pregnant or not. I have to test before I start the next round of the fertility drugs. Its too soon to tell if I'm pregnant or not right now. The clomid is still messing with my body as the breasts are sore, pelvis is sore and I'm still getting nausea. The nausea could of course be from my other medical problems. Hopefully Quan Yin will have answered my prayers.
I opened a new box of Flovent today and read the instruction sheet. I will finish up my last puff of the Flovent inhaler I have open tonight. Turns out that Flovent shouldn't be used on women that are pregnant or are trying to get pregnant. I guess that is just one more medicine I'll have to go off of cold turkey. I think I'll still be allowed my rescue inhaler as breathing is a necessity. I only use it when I have an asthma attack. I'm wondering why I wasn't told I should go off it at the last visit with the PA (physicians assistant). I shouldn't even wonder because this was the PA that messed up my last EFMP (exceptional family member program) form and neglected to complete and sign one page of the four pages that had to be signed.
I'm supposed to be seeing a real doctor once a month and I should be assigned a real doctor as my PCM (primary care manager). But the clinics here have seen fit to move my PCM Doc to another clinic of which I'm not allowed to go to because I can only go to the one I'm assigned to. Well that is unless I change out my PCM to an off-Post clinic. The paper work involved in changing to off-Post care is daunting. Last time I tried to change out of my clinic I got the routine of go to this other office which then they sent me to yet another office, and that one didn't have a clue then sending me back to the first one. Next duty station I can only hope it gets better. For now I'll have to deal with the crappy care they give us family members. The last time I saw a real doctor was when I saw a specialist. PAs and NPs (nurse practitioners) are great for dealing with the small stuff but when you have a patient with several autoimmune disorders and other medical issues its usually out of their knowledge range.
My pumpkin
The Halloween or Samhain, if you will, decorations are finally finished and put in their proper places. It took me several hours to carve my pumpkin and I'm not sure its as good as it could be. My design is one I modified from a photo of his units design. Its his patch with the arrowhead in the back ground and their number above. Last year was the first year I ever carved a pumpkin so I'm still learning about designs. I love how my husband just dug in with a knife and started carving away after the guts were removed.
I'm on my fourth load of laundry right now, that makes at least twelve loads this week, my husband sure does dirty a lot of clothes. Tonight if things go well I'll probably get around to making pumpkin bread and roasting some pumpkin seeds. Last year I kind of burnt a few of the seeds, but it was my first time with that too so I'm learning.
I got a call early this morning from the staffing place asking if I've yet chosen a new respite care provider. I explained to the guy on the phone that the one I tried out yesterday just didn't work out. He said that I'm listed as having the following three providers: TL, AS, and JJ. I told him I've never even heard of TL, I fired AS for being lazy and wanting to only sleep when she was supposed to be working and that I still have JJ but she lives rather far away to be at my beck and call. So he noted the changes. I'm still wondering who the heck that TL gal is. I've heard the name as in her first and middle being as such but only in my past. The TL I knew is actually TLS and she is a crack head now. I would not use her for several reason; the crack being the first, the second would be the distance as she is on the opposite coast, the third is that she is a thief. I guess the thief part could be on account of the crack addiction too.
On a different subject now, I have about another week to go until I can test to see if I'm pregnant or not. I have to test before I start the next round of the fertility drugs. Its too soon to tell if I'm pregnant or not right now. The clomid is still messing with my body as the breasts are sore, pelvis is sore and I'm still getting nausea. The nausea could of course be from my other medical problems. Hopefully Quan Yin will have answered my prayers.
I opened a new box of Flovent today and read the instruction sheet. I will finish up my last puff of the Flovent inhaler I have open tonight. Turns out that Flovent shouldn't be used on women that are pregnant or are trying to get pregnant. I guess that is just one more medicine I'll have to go off of cold turkey. I think I'll still be allowed my rescue inhaler as breathing is a necessity. I only use it when I have an asthma attack. I'm wondering why I wasn't told I should go off it at the last visit with the PA (physicians assistant). I shouldn't even wonder because this was the PA that messed up my last EFMP (exceptional family member program) form and neglected to complete and sign one page of the four pages that had to be signed.
I'm supposed to be seeing a real doctor once a month and I should be assigned a real doctor as my PCM (primary care manager). But the clinics here have seen fit to move my PCM Doc to another clinic of which I'm not allowed to go to because I can only go to the one I'm assigned to. Well that is unless I change out my PCM to an off-Post clinic. The paper work involved in changing to off-Post care is daunting. Last time I tried to change out of my clinic I got the routine of go to this other office which then they sent me to yet another office, and that one didn't have a clue then sending me back to the first one. Next duty station I can only hope it gets better. For now I'll have to deal with the crappy care they give us family members. The last time I saw a real doctor was when I saw a specialist. PAs and NPs (nurse practitioners) are great for dealing with the small stuff but when you have a patient with several autoimmune disorders and other medical issues its usually out of their knowledge range.
Tuesday, October 19, 2010
Voting Absentee If Possible
This year I'll be voting again with an absentee ballot. Two years ago when I moved out of my home state to my spouse's new duty station I voted absentee ballot for the primaries. This year I was hoping to vote the same way again. Somehow I doubt I'll even see the absentee ballot.
I found out through an email that my home state is one of those being sued for not sending out the absentee ballots nor updating their addresses. Yes my address did change but I did update it. I was told this would take care of the problem. I went online today and found out that I'm still listed as the old address! So much for updating the physical and voting address through the DMV, that was a wasted call.
Taking matters into my own hands I researched my options. I decided to go to the home state web page for the voting registration. After finding a pdf file where I could type in my responses online then print, sign, stamp and send it out I did just that. My husband came home on lunch today and I had him update his registration as well.
Folks voting is very important, not just to the military but to every one that has that right to vote. I'd rather know that the candidate that I voted for didn't get elected then to just complain about who is in office knowing that I didn't vote and could have changed who is in that office right now.
According to what I read in order to vote absentee I must have my registration paper work in the mail 25 days before the voting. I don't think its going to make it at all as I'm way past the 25 days. But at least I can honestly say I tried. My home state is the one that screwed me over but next time they'd better send me the ballot option.
On a side note the friend problem still exists. The soldier co-worker is now talking about getting out of the Army after getting married this time. I can only hope. As for the EFMP paperwork to ACS, well they emailed me today stating that my spouse had to go in there and fill out some paperwork which would take about 15 minutes. So why they gave me a whole new set of forms that a doctor had to fill out I have no idea, do you? I can't figure out the military paper work system. Finally the lawyers in NY I mentioned a few days ago...I have a phone conference with them on Thursday to see how my case is progressing. Don't ever get hurt at work because Workers' Compensation will fight you tooth and nail for a single dollar including the medical.
That's my update for today. Off to go finish up the second load of laundry now and try to get in a shower. Finally a day without drama. YAY!
I found out through an email that my home state is one of those being sued for not sending out the absentee ballots nor updating their addresses. Yes my address did change but I did update it. I was told this would take care of the problem. I went online today and found out that I'm still listed as the old address! So much for updating the physical and voting address through the DMV, that was a wasted call.
Taking matters into my own hands I researched my options. I decided to go to the home state web page for the voting registration. After finding a pdf file where I could type in my responses online then print, sign, stamp and send it out I did just that. My husband came home on lunch today and I had him update his registration as well.
Folks voting is very important, not just to the military but to every one that has that right to vote. I'd rather know that the candidate that I voted for didn't get elected then to just complain about who is in office knowing that I didn't vote and could have changed who is in that office right now.
According to what I read in order to vote absentee I must have my registration paper work in the mail 25 days before the voting. I don't think its going to make it at all as I'm way past the 25 days. But at least I can honestly say I tried. My home state is the one that screwed me over but next time they'd better send me the ballot option.
On a side note the friend problem still exists. The soldier co-worker is now talking about getting out of the Army after getting married this time. I can only hope. As for the EFMP paperwork to ACS, well they emailed me today stating that my spouse had to go in there and fill out some paperwork which would take about 15 minutes. So why they gave me a whole new set of forms that a doctor had to fill out I have no idea, do you? I can't figure out the military paper work system. Finally the lawyers in NY I mentioned a few days ago...I have a phone conference with them on Thursday to see how my case is progressing. Don't ever get hurt at work because Workers' Compensation will fight you tooth and nail for a single dollar including the medical.
That's my update for today. Off to go finish up the second load of laundry now and try to get in a shower. Finally a day without drama. YAY!
Sunday, October 17, 2010
Sunday Brings Changes
Every Sunday always brings with it new changes. Just yesterday we were having fun acting like kids and today its four loads of laundry for me and mowing the lawn for him. Today we have to be adults. Can I have yesterday back?
I haven't been sleeping well for the past few nights. I'm not sure if its the fertility drugs or just the cold weather. Turning the heat up isn't an option because its central heat which means it blows dry air around the house and causing my asthma to flare up. So instead I sit in the cold, damp air with the heat set to 62 F.
This morning I woke up at 0500 hrs with really bad back pain. The L3-L4 and L4-L5 are the site of the bulging and herniated discs. Due to the fertility drugs my body temperature has been running a bit higher than the 98.6 F so my husband's hands are like a soothing ice pack to a fresh injury. Most mornings I can well tolerate the pain but this morning I was writhing in pain for almost six hours before finally saying to heck with it and getting up. Downward Dog wouldn't fix this type of pain today got to love Fibromyalgia (sarcasm).
http://www.fibromyalgia-symptoms.org/ If you are unfamiliar with Fibromyalgia or would just like a bit more information on the topic go to that website.
Tomorrow I have to try to remember to call my lawyers in NY. Tomorrow I need to get my butt to ACS for my EFMP renewal paperwork. Tomorrow I...well I'll wait until tomorrow to see what tomorrow is going to have in store for me. For today I'm just going to do my laundry and try to relax without thinking of the stuff that needs to be done tomorrow. After all its still today and the government offices are closed on Sundays.
Maybe tonight I'll get one last chance for the weekend at being a kid with my spouse.
I haven't been sleeping well for the past few nights. I'm not sure if its the fertility drugs or just the cold weather. Turning the heat up isn't an option because its central heat which means it blows dry air around the house and causing my asthma to flare up. So instead I sit in the cold, damp air with the heat set to 62 F.
This morning I woke up at 0500 hrs with really bad back pain. The L3-L4 and L4-L5 are the site of the bulging and herniated discs. Due to the fertility drugs my body temperature has been running a bit higher than the 98.6 F so my husband's hands are like a soothing ice pack to a fresh injury. Most mornings I can well tolerate the pain but this morning I was writhing in pain for almost six hours before finally saying to heck with it and getting up. Downward Dog wouldn't fix this type of pain today got to love Fibromyalgia (sarcasm).
http://www.fibromyalgia-symptoms.org/ If you are unfamiliar with Fibromyalgia or would just like a bit more information on the topic go to that website.
Tomorrow I have to try to remember to call my lawyers in NY. Tomorrow I need to get my butt to ACS for my EFMP renewal paperwork. Tomorrow I...well I'll wait until tomorrow to see what tomorrow is going to have in store for me. For today I'm just going to do my laundry and try to relax without thinking of the stuff that needs to be done tomorrow. After all its still today and the government offices are closed on Sundays.
Maybe tonight I'll get one last chance for the weekend at being a kid with my spouse.
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