Friday, February 22, 2013

CD 2 Endo Wins

Today is cycle day two.  The pain from the Endometriosis is pretty bad today and was so last night.

Last cycle was only 18 days and I have my suspicions why it was so short.

  • I have crappy eggs that have endo defects and bad mitrochondria      ----OR-----
  • it was because The RE office scheduled my SIS for just after ovulation making implantation impossible.
It could be both. 

I did tell the male receptionist that I had ovulated on Sunday when I went in to make sure I had instructions on the next day Monday.  I had done the blood work at the lab.  They figured that an HCG test would sufficient.  I beg to differ.  Had they done a progesterone test they might have noticed it was on the rise already and quite possibly have elected to do the SIS next cycle during the days 5-8 it was supposed to be done.

Not at CD 10!

At CD 12 my progesterone was already 13.13.  Had they checked it at CD 9 it might have shown the rise that would have moved the test date. 

Had they listened to me at test day, CD 10 when I told them I was bleeding and deferred testing for another cycle I might not have been in such  pain from the SIS. 

Had Major S actually paid attention to what she was doing and not gotten all up in my face after things might have gone a bit differently. 

Right now I have no trust or faith in my RE office and these are the medical personnel  I'll be trusting to coordinate my care with PNW. 

I'm scared.

Oh the reason why they pushed out the CD 5-8 test for SIS to CD 10 was because they didn't have a slot for me on those days.  So much for Lt.Col.B. promising my spouse and I that he would make sure if they had to add a slot one would be added.  He might have requested it but his staff ignored his request.  My guess is because he isn't in the office but one day a week and this week he wasn't there at all.

Those who follow my blog and do use the same clinic I have a question or two for you....

Have you had problems with scheduling?

Have you had issues with their staff?

Have you had to go back and remind the staff on more than one occasion that they forgot to put in a lab test they said they would put in but you find that when you get to the lab it isn't there?

Have they forgotten to put in your meds and you get to the pharmacy to find out there is nothing there in the system for you after waiting in line for a long time?


I've had all of the above happen to me and I'm wondering if I'm not alone.  Let me know.  Thanks.


25 comments:

  1. I can't believe they messed up like this! All of us who pursue ART know that timing is EVERYthing. It doesn't sound like they can be trusted :( I'm sorry that you are having to go through this. IF is hard enough, you don't need to add an RE and clinic that you can't trust to the mix.

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    1. I realize that my eggs most likely aren't high quality but if the procedure had been done according to set protocol timeline I wonder, would things be different now? Just the cycle before I did get a positive HPT, could I have had another one this cycle? I'll never know now.

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    2. But still, I've had SIS procedures done many times now, and it is always on a particular day while TTC, or TTC is put off until the next month. Maybe they are writing this month off because you are planning a donor cycle in March? They should have discussed the fact that you are still doing timed intercourse with YOU. I hope that everything is still looking good for a donor egg cycle in March, because Feb is obviously a wash :(

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    3. They knew I was supposed to have a follicle scan done too which makes me wonder if they screwed up the SIS date for the follicle scan date.

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  2. I would be livid and making a formal complaint. Why the hell were they doing the SIS after Ov on a cycle when they knew you were TTC? If anything, they should have listened to you and rescheduled for the next month (earlier in the cycle too). Total BS- I am livid for you.

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    Replies
    1. IVF Nurse J just called me back. She admits the SIS could have been the cause of the shortened cycle but that is really rare. Um, I guess they forgot how I always beat the odds. If it's rare it usually happens to me.

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  3. Replies
    1. Some day I think it would be easier to talk to a wall than the RE clinic.

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  4. I can't believe they messed up so badly and didn't listen to you. That sucks and I'm sorry.

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  5. That's so awful!! Doctors should always listen to patients, because you know your body best. I'll keep fingers crossed for this cycle!

    Happy ICLW!

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    Replies
    1. I'll be midway through a cycle when I go for my donor egg consult.

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  6. Endo can go fuck itself. And so, it sounds, can your clinic. *hugs* I'm so sorry.

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  7. Wow that is really sucky. People should be able to trust their doctors and staff.

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    Replies
    1. I trust the ones that aren't there right now. Can't wait for them to get back.

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  8. Hi, Happy ICLW! Thanks for stopping by. I wrote about my my frustration communicating with my RE's office in a post http://minetocommand.blogspot.com/2013/01/minor-annoyances.html

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  9. (hit publish too soon). After it was suspected that I may have a uterine septum, I was scheduled to have a saline sono to evaluate further and my appointment needed to be rescheduled. I couldn't come in during the time that they wanted me and I later received a message that the RE looked at my HSG films and didn't think the septum (if present) was too significant, so it was cancelled completely. After my MC I did have the saline sono and it was found that the seputm was about 1/3 of my cavity and needed to be resected. I wonder at times if I was cancelled because I was being 'difficult' and of course with my hindsight I wish I just tried to reschedule it for the next month, but I remind myself that we're all working with the information we have and are trying to do our best (I hope)

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    Replies
    1. Hoping that things work well for you.

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  10. I'm sorry - it sounds like they really aren't listening to you at all. Hope you can figure out some way to stay on top of them (i.e. do their job for them...). Shouldn't be that way, but it seems like this is.

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    Replies
    1. I'm thinking we all need to be our own patient advocates these days.

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  11. Thanx for popping! sorry for the mess-up

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  12. Hi from ICLW. Thanks for stopping by my blog.
    I'm so sorry you're facing all this frustration from those who should be providing you care. IF is hard enough without having to deal with extra crap because of medical professionals who don't listen or seem to care, and self-advocacy is so exhausting in these circumstances...I really feel for you, and am facing some of the same frustrations.

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    Replies
    1. It is a shame that we have to fight for the medical care that we need.

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