Just heard back from the RE office.
Nurse S called me because IVF nurse J was busy doing clinic.
Nurse S said they heard back from Lt.Col.B. over the weekend. (wonders why they didn't call me or email since they have my email address)
He said there is nothing that they can do for me.
She said I can take Motrin and I'm to rest.
Not to worry about the fever unless it goes up to 100.5. (considering it was just a tad over that last night I'm thinking that maybe she meant 105 and not 100.5)
So I told Nurse S that I'm to suck it up and she said she wouldn't put it that way because it would be rude to say it but that yes there is nothing that can be done for me.
So I'm your problem child? She said unfortunately it looks that way since they can't help me.
Sighs. I did tell her I had thought seriously about going to the ER but realized that they too couldn't do much for me and would probably tell me just that.
Nurse S is really nice. She did mean well. I just frustrated that they can't do a thing for me to make this easier. She was a bit miffed at IVF nurse J who told me to not take pain killers. Nurse S assumed that the other nurse thought I was doing a FET soon. I said not until at least the end of May. So there is no reason why I can't take something for pain when I need it with the exception of my stomach issues which might not always tolerate the Motrin.
So some good news:
I can take pain killer
They are well aware of my issues
This is going to be my new "normal" as I continue to age and battle Endometriosis
Seriously they need to find a cure for Endometriosis as this really sucks! I have a marriage retreat this weekend and would rather not be packing a suitcase filled with feminine supplies.
Sorry that there isn't much they can do :( Endo sounds awful, and it's a shame they don't have a way to handle it better.
ReplyDeleteJust talked with my husband he sounded worried. This new normal is going to make things harder on both of us. Traveling is already difficult enough with my other issues.
DeleteI'm sorry that they can't really do anything. :(
ReplyDeleteSomeday I hope they find a cure. At least with using donor eggs I won't be passing the endometriosis on to a daughter if I have one.
DeleteSorry that they cannot help you. I have read that painful periods are normal with endo, what do other people do to deal with the pain?
ReplyDeleteIt concerns me how your endo could impact your getting pregnant with DE? Does it make it risker or more problematic? Or do the pregnancy hormones calm it down? Sorry, I dont know enough about it hence the questions.
Sometimes the pregnancy hormones will calm down the endo but it all depends on how much scar tissue is already there too. Scar tissue does not like to stretch and can make pregnancy very painful.
DeleteBut there ARE things that are done for endo. Depot lupron for one, which can be very helpful. Laproscopy, of course, and birth control pills which can help. None of which you can do while ttc :( I'm surprised they haven't mentioned depot Lupron, though, because it is taken for about 3 months prior to ttc to clean the endo out of the ute. Being on depot Lupron isn't pretty, but you are already living not pretty. I hope they gave you elephant Motrin not the prissy stuff.
ReplyDeleteYes there are things that can be done for Endo if I'm not trying to conceive. I remember the depo shot from when I lived in Germany...not fun.
DeleteI'm sorry there's nothing better than "Suck it up and take Motrin." It's really not fair and I hope that there's a cure or at least a better treatment in the near future.
ReplyDeleteI hope that for the younger women suffering from it they can find a cure before their reproductive systems are ruined.
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